Homozygous Familial Hypercholesterolemia Information and Resources

Fund Status and Eligibility

Fully Allocated - Effective 10/15/2018, we are unable to process applications that are pending or accept new or renewal applications at this time. Should additional funding for Homozygous Familial Hypercholesterolemia Fund applicants become available in the future, it will be necessary to re-apply if assistance is still needed.

Maximum Award Level: $7,500 Per Year

Eligibility Criteria

  • Patient must be insured and insurance must cover the medication for which patient seeks assistance.
  • Patient must have a confirmed diagnosis of Homozygous Familial Hypercholesterolemia .
  • Patient must reside and receive treatment in the United States.
  • Patient's income must fall below 400% of the Federal Poverty Guideline (FPG) with consideration of the Cost of Living Index (COLI) and the number in the household.

Get Help With Your Treatment: How to Apply Online

Information About the Disease

Familial hypercholesterolemia is a genetic disorder characterized by high cholesterol levels, specifically very high levels of low-density lipoprotein, in the blood and early cardiovascular disease. Homozygous Familial Hypercholesterolemia (HoFH) is a rare, but very severe form of an inherited disorder resulting from a genetic mutation on chromosome number 19. This mutation makes the liver incapable of metabolizing cholesterol, specifically low-density lipoprotein (LDL), resulting in very high LDL levels. The disorder leads to aggressive atherosclerosis, which if left untreated, causes individuals to experience heart attacks or death before age 30. Many patients with homozygous FH must undergo LDL apheresis on a regular basis. LDL Apheresis is a process by which blood is removed, LDL-C is filtered out, and then the person’s blood is returned to their body. It is similar to dialysis. This form of familial hypercholesterolemia occurs in about 1 in 160,000 to one million people worldwide.

Homozygous Familial Hypercholesterolemia Resources

PAF's National Underinsured Resource Directory

www.patientadvocate.org/index.php?p=877

Acute Coronary Syndrome: Stroke and Heart Attack Prevention (Interactive Patient Resource developed by The FH Foundation, the Association of Black Cardiologists and Krames Staywell)

http://www.ksw-gtg.com/acs/#/1/

American Academy of Pediatrics

https://www.aap.org/en-us/Pages/Default.aspx

American College of Cardiology

http://www.cardiosource.org/acc

American Heart Association

http://www.heart.org/HEARTORG/

American Lung Association

http://www.lung.org/

Familial Hypercholesterolemia

https://thefhfoundation.org/

Familial Hypercholesterolemia Diagnosis app for iPhone

https://itunes.apple.com/us/app/fh-diagnosis/id543676258?ls=1&mt=8

Familial Hypercholesterolemia Journeys

https://www.fhjourneys.com/

Genes in Life (Find out more about the relationship between health and genetics)

http://genesinlife.org/

Genetics in Primary Care Institute (American Academy of Pediatrics)

https://geneticsinprimarycare.aap.org/Pages/default.aspx

Global Genes Project

https://globalgenes.org

Global Genes Toolkits

https://globalgenes.org/toolkits/

International Familial Hypercholesterolemia Foundation

http://www.fh-foundation.org/

MEDPED – Make Early Diagnosis to Prevent Early Death

http://www.medped.org/

National Institutes of Health

http://www.nih.gov/

National Lipid Association

https://www.lipid.org/

National Society of Genetic Counselors

http://www.nsgc.org/

Preventive Cardiac Nurses Association (PCNA)

http://pcna.net/

 

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PAF Co-Pay Relief Program makes no representation as to the accuracy or any other aspect of the information contained on any website accessed from the CPR website, nor does PAF Co-Pay Relief Program necessarily endorse the website information provided.

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